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CASE STUDY

Capturing Patient Experiences through Pain Diaries: The Sickle Cell Pain Diary Report (SCPD)

Patients with the inherited blood cell disorder sickle cell disease (SCD) face significant challenges affecting many areas of everyday life, from work and school to family relationships and social interactions. With both chronic and acute manifestations of SCD and the extensive effects of sickle cell pain crises, one effective approach to measuring patient experiences is by gathering daily diary entries from patients and caregivers.

Rather than relying only on acute or emergency medical visits as a way to measure SCPC-related outcomes, it’s essential that researchers and care teams leverage a better method for accurately evaluating pain frequency, severity and consequences on patient lives. Learn more about the Sickle Cell Pain Diary Report (SCPD) in a free case study from QualityMetric.

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Patients with the inherited blood cell disorder sickle cell disease (SCD) face significant challenges affecting many areas of everyday life, from work and school to family relationships and social interactions. With both chronic and acute manifestations of SCD and the extensive effects of sickle cell pain crises, one effective approach to measuring patient experiences is by gathering daily diary entries from patients and caregivers.

Rather than relying only on acute or emergency medical visits as a way to measure SCPC-related outcomes, it’s essential that researchers and care teams leverage a better method for accurately evaluating pain frequency, severity and consequences on patient lives. Learn more about the Sickle Cell Pain Diary Report (SCPD) in a free case study from QualityMetric.

This Case Study Will Discuss:

  •  The existing methods of measuring SCPC-related outcomes
  • The challenges of collecting real-world patient experiences
  •  The use of patient and caregiver Sickle Cell Pain Diary Reports